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Comments: Hello. Here I have found a lot of useful to myself. Many thanks. |
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Comments: How long did it take to get your pnh diagnosis. My husband has all the symptoms except dark urine and has been suffering for almost 10 years. We've been to the finest NYC hematologists and it's always the same thing--rare blood disorder, no treatment, no cure. We are very frustrated because it sounds like he has pnh to us. |
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Comments: Hi Alison, I was thinking about you and wanted to say "hi." You're such a WONDERFUL person |
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Comments: Who would have ever believed it but I am sitting here at Micrel with Steve Carter. After 23 years at National I finally had enough and ended up at Micrel as Inside Sales Manager. Sorry that I missed you. |
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Comments: Hi Alison, I just wanted to drop in to tell you what a wonderful inspiration you are. God bless you and know I am praying for you. I met your Dad thru Cruise Critics and then he and Iain on our cruise. They are both such great guys and I know you can count your blessings have them both. Wishing you have a wonderful life. |
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Comments: Some days we just need to see a smile. Thank you for all of yours. I developed PNH in 1991 and it's been a life I never planed... but somehow I am gathered with good people and wonderful days have made up for the bad ones. Keep up the smiles. |
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