I am so happy now that my webpage will be free on people tring to put
there bad liks to that I do not want my
guestbook to become
cluttered with. I like to maintain a website that helps people with questions
they may have concering bone marrow transplants or PNH. Alison Smaltz
Alison Smaltz
CA USA - Monday, September 01, 2003 at 11:19:15 (PDT)
I just finished cleaning all the Spam out of your
guestbook. I can't
believe that companies stoop so low as to spam guest books with pornographic
advertisements. I have also installed a Spam Protection. I hope this helps Love,
Dad
Dad
Sunnyvale, CA USA - Sunday, August 31, 2003 at 16:41:52 (PDT)
Wow!! You went through a lot. I'm so glad you made it:-)Thank you for sharing. The journal is very interesting. Also helpful to others. For example my potasium tends to be low and found from the journal could be sign of kidney problems. Also, my bili is 6.8. Maybe should insist this get checked out more-see a PNH expert (last saw one in ' 99). Got a lot of edema when out in heat all weekend.
Hugs to you Alison,
Susan Todd
PNH Support Group
Susan Todd <suztree@yahoo.com>
Chicago , USA - Tuesday, August 26, 2003 at 09:30:15 (PDT)
Wow!! You went through a lot. I'm so glad you made it:-)Thank you for sharing. The journal is very interesting. Also helpful to others. For example my potasium tends to be low and found from the journal could be sign of kidney problems. Also, my bili is 6.8. Maybe should insist this get checked out more-see a PNH expert (last saw one in ' 99). Got a lot of edema when out in heat all weekend.
Hugs to you Alison,
Susan Todd
PNH Support Group
Susan Todd <suztree@yahoo.com>
Chicago , USA - Tuesday, August 26, 2003 at 09:29:55 (PDT)
Hello guys, thanks for an very good site, i love it and i love you... i love the world ... you'll love me after you visit my meridia site meridia
Meridia <sherlian@hotmail.com>
NY, NY USA - Monday, August 25, 2003 at 06:22:24 (PDT)
Wow! What a nice site!
carol <carol@carol876.bigyardsale.org>
addison, il USA - Friday, May 23, 2003 at 23:25:01 (PDT)
Great site and greetings to Utah, thanks!
rosemary <rosemary@rosemary283.onlyfreehosting.com>
irving, tx USA - Tuesday, May 20, 2003 at 08:50:10 (PDT)
Hi--I checked back on your site to see what was new and I found out I had posted to your site about 12 times. Don't know how that happen. Take them off if you want. I don't want to ruin your great site. Sorry, Joan
joan james <joan62002@aol.com>
alton, il USA - Friday, May 16, 2003 at 09:50:22 (PDT)
Hello, I found you at Altavista. You have wealth of information on your site and a nice design.
ethel <ethel@ethel614.getmyschool.com>
plainfield, nj USA - Tuesday, May 13, 2003 at 03:33:46 (PDT)
I am honored to drop a line here and say thank you for keeping this great site online.
rosemary <rosemary@rosemary59.ukguineapigs.org.uk>
irving, tx USA - Saturday, May 10, 2003 at 15:03:16 (PDT)
Hey, greetings from New York. Your site was very impressive...Good Luck.
rosemary <rosemary@rosemary366.sylera.com>
irving, tx USA - Tuesday, May 06, 2003 at 16:48:56 (PDT)
Enjoyed your site very much! Thank you! Keep up a great work!
betsy <betsy@betsy926.arknoise.com>
detroit, mi USA - Saturday, May 03, 2003 at 10:39:45 (PDT)
My sister, Carrie Barbosa, was thinking about developing a website similar to yours for her daughter, Amber, and sent me your link. However, rather than checking out your website I soon became engrossed in your amazing story and your ability to overcome enormous obstacles. Just like Carrie, Eddie and Amber's story of optimistic perseverance, your story is truly inspiring and something I will always remember and draw upon when I think things can't get any worse. You are a true HERO...
Andy Bettencourt <andyb@iscweb.com>
Rohnert Park, Ca USA - Monday, April 28, 2003 at 09:41:38 (PDT)
Just a great site, thanks!
stephanie <stephanie@stephanie41.getmyschool.com>
chicago, il USA - Monday, April 28, 2003 at 04:03:19 (PDT)
Very nice site!. Thanks for taking the time to set it up.
betsy <betsy@betsy113.leedsnet.org>
detroit, mi USA - Sunday, April 20, 2003 at 15:40:38 (PDT)
Hi Alison:
I haven't heard from you in a while. Your family would like to wish you a Happy Easter.
Mindy <m_smaltz@yahoo.com>
USA - Thursday, April 17, 2003 at 16:16:23 (PDT)
What an unbelievable site you got here!! definitly put it in the links section of my site.
hilda <hilda@hilda829.dostweb.com>
sunnyvale, ca USA - Saturday, April 12, 2003 at 08:53:50 (PDT)
Greetings from France! Wonderful site!
dawn <dawn@dawn334.xyz.ro>
austin, tx USA - Monday, April 07, 2003 at 19:46:31 (PDT)
I emailed you a couple of times about my cousin Nancee Braddock and wanted to THANK YOU again. I've taken time now to really check out your site. Continued good health to you and the site is GREAT!!! Joan
joan james <joan62002@yahoo.com>
alton, il USA - Thursday, March 06, 2003 at 09:45:01 (PST)
Nice site!!!
dsl boy <dslboys2000@yahoo.com>
USA - Thursday, February 27, 2003 at 23:51:18 (PST)
Excellent website, very informative. Keep up the excellent work.
Samantha Williams <willsamantha4@yahoo.com>
USA, none USA - Tuesday, February 11, 2003 at 09:54:17 (PST)
Hi---I believe Nancee Braddock's grandma Lula McQuiddy Lillard and my grandpa Ephraim Stout Lillard were sister and brother. I have been trying to find Robert Lillard Braddock Jr. and Nancee for genealogy only. I know we are relatives and would like to hear from you. Thanks, Joan
Joan Lillard James <joan62002@yahoo.com>
Alton, IL USA - Wednesday, November 20, 2002 at 12:30:04 (PST)
hey hope you are doing better it was good to see you so happy in your pictures.
robert zamora
el paso , tx USA - Tuesday, November 05, 2002 at 08:36:03 (PST)
Your site has been successfully moved from JUMPLINE.COM to ADDR.COM.
Dad
Sunnyvale, CA USA - Saturday, March 16, 2002 at 09:03:26 (PST)
Hi Alison! I'm in the Geography class and was just browsing your site. Thanks for checking out my site!
Stephanie <sklb@sklbdesigns.com>
Roseville, CA USA - Sunday, November 25, 2001 at 03:24:14 (EST)
Happy Thanksgiving!
I will see you when I get back from our cruise.
Love,
Dad
Dad <jsmaltz@pacbell.net>
Sunnyvale, CA USA - Wednesday, November 21, 2001 at 21:48:34 (EST)
Dear Alison,
Your new website is up and operational. Have fun. Love, Dad
Dad
Sunnyvale, CA USA - Tuesday, November 20, 2001 at 23:24:01 (EST)
Alison....
I am so happy your special day went so well. I can't wait for you to post pictures of the wedding. I hope you have a wonderful Honeymoon.
Best wishes, your friend, Rebecca
Rebecca <Rebecca270@aol.com>
Salem, Or USA - Tuesday, July 31, 2001 at 20:13:01 (PDT)
Just wanted to offically WELCOME you to our family. The wedding was beautiful and you were a very beautiful bride. Our prayers are with you and Ray while on your honeymoon and always.
Aunt Jan <gonzfam@garlic.com>
Gilroy, Ca USA - Tuesday, July 31, 2001 at 18:56:50 (PDT)
Had fun at the shower. Hope you got everything to make your first night as husband and wife just perfect. I am just writting to thank Lainie and her mom for the wonderful party they had for you. Thank you.... You made everyones day.
Melinda Smaltz <m_smaltz@yahoo.com>
Hollister, CAA USA - Wednesday, June 20, 2001 at 18:54:08 (PDT)
Hi Alison! I just wanted to let you know that I visited your site and saw your wedding pages. It is beautiful where you are getting married and you are going to look beautiful also!! I can't wait! I will see you at your shower. Your friend... Alicia
Alicia Fausto <aleisha99@yahoo.com>
Morgan Hill, CA USA - Friday, June 08, 2001 at 11:27:49 (PDT)
Hello, I was looking for some PNH websites and stumbled across this one. Allison, you are very inspiring, and your problems seem small compared to mine!
I was feeling depressed about my PNH, and that's why I was looking for websites again. But I was diagnosed with this in 1994, when I was 24 years old. I didn't really take it seriously either, until in 1996 I had orders to Aviano
AB in Italy. I had caught a bad cold and managed to get dehydrated, then I was hospitalized for the dehydration and then I lost partial function of my kidneys, and they had to transfuse me with a couple of
pints of blood, I will never forget that awful pain, I just whished I was dead. Then the doctor put me on Prednisone for 2 months until my blood count came back up, I hate that stuff. I swelled up like
a balloon, plus I lost my orders, but I begged the doctor to let me stay in the Air Force, and not to relieve me of duty. So now I just go have check ups with a hemotologist at Ft Bliss, in El Paso. I just take iron and folic acid every day to treat the anemia
and that's about it, except I did get sick the other day and had to take the steriods for a couple of weeks so. The doctors haven't really pushed the BMT issue, that stuff sounds so complicated, I just keep praying that GOD will take this disease away, I am always wondering why I got blessed with it.
I agree with alot of the things you said in your journal about experiences in life making you stronger! So good luck on your wedding and the Dental Career. Carola Duckett
Carola Duckett <jpd@swpc.net>
Clovis, NM USA - Saturday, May 19, 2001 at 16:59:56 (PDT)
I truly hope that I can help you - and that you can help me.
I need the money but I also want to do something with my life and help someone else at the same time.
In my country selling is not prohibited by law!
So I want to sell you my kidney. I am a 21 years old male - german race. Additionally I am very healthy. I study at the Business University in Austria (Europe) where I live too. Austria has better hospitals than Germany! Well, I dont have debts, but I suffer from having so very low money. We can talk about the price. In Austria it is not prohibited to donor a kidney - there is no law - and it is ethnically allowed but you need to pay the costs. The costs are a little bit less than in the USA .
But I believe that the general and private hospitals are compared to the USA EXCELLENT and much better (sorry, thats true) And maybe, if you are insured with the national austrian health-insurance ("Krankenkasse Selbstversicherung") than the insurance pays the costs - even if you dont have the citzenship.
Please contact me, I am truly serious. And if you come to Austria you would truly enjoy your stay in this famous country where Mozart Amadeus lived.
Sincerly,
franklin bux
Vienna/Austria EU
stauderm@yahoo.com
Franklin Bux <stauderm@yahoo.com>
Vienna, Austria/Europe - Saturday, May 12, 2001 at 05:07:17 (PDT)
I truly hope that I can help you - and that you can help me.
I need the money but I also want to do something with my life and help someone else at the same time.
In my country selling is not prohibited by law!
So I want to sell you my kidney. I am a 21 years old male - german race. Additionally I am very healthy. I study at the Business University in Austria (Europe) where I live too. Austria has better hospitals than Germany! Well, I dont have debts, but I suffer from having so very low money. We can talk about the price. In Austria it is not prohibited to donor a kidney - there is no law - and it is ethnically allowed but you need to pay the costs. The costs are a little bit less than in the USA .
But I believe that the general and private hospitals are compared to the USA EXCELLENT and much better (sorry, thats true) And maybe, if you are insured with the national austrian health-insurance ("Krankenkasse Selbstversicherung") than the insurance pays the costs - even if you dont have the citzenship.
Please contact me, I am truly serious. And if you come to Austria you would truly enjoy your stay in this famous country where Mozart Amadeus lived.
Sincerly,
franklin bux
Vienna/Austria EU
stauderm@yahoo.com
Franklin Bux <stauderm@yahoo.com>
Vienna, Austria/Europe - Saturday, May 12, 2001 at 05:06:40 (PDT)
Hey Alison, It's your cousin Brittany. Aunt Leta just recently sent me this new web site and I wanted to check it out. Its awesome. For a long time I didn't really understand the extent of what you were going through because I was so young but I do now and I can't believe what a strong person you must be to pull through it all. I'm glad things are going well for you. Congrats on your engagement. I'm working on dad to try to get him to take me out to Cali this summer to be there for the wedding. I think it's workin! I can't wait to see all you guys! I hope we can start e-mailing. My e-mail address is BRITTNJC@AOL.COM. Love your Couz **BRITT**
Brittany <BRITTNJC@AOL.com>
BLOOMFIELD, CT USA - Monday, May 07, 2001 at 08:52:16 (PDT)
Just added some pictures to your Wedding Site
Love,
Dad
Dad <jsmaltz@pacbell.net>
Sunnyv ale, CA USA - Sunday, March 18, 2001 at 05:09:11 (PST)
Alison, thank you for sharing all your experiences! I had a BMT on Oct. 10, 2000 and can appreciate your story! I will e-mail you soon!
JEANNE <JEANNEGON@AOL.COM>
PHILA, PA USA - Friday, February 02, 2001 at 09:55:36 (PST)
Hello Ali,
I hope there is a doctor or therpist who can help Alison regain complete control of her memory and concetration on a subject. Her memory has not et been successfully treated from Stanford Hospital, by doctor. They say they are running tests, but how long can that take. I want answers and not the run-around. Please by honest and strsight forward with assessment of my sister nad stop the dilly-dallying. I am read and my sister is readfy for taking immediate actiation to help her in the comming semesters at Cabrillo Colloge in Aptos, CA, and this makes me very upset that more action hasen't been taken in her break from school (that YOU Know about). " She just needs a doctor or neuronjiristist that will help her remember things in a diifferemt way." A way that fits with her new personsonality. So please let the doctor that is in charge of her case make so immediate change before here new classes start.Love,
Melinda Smaltz
Mindy <m_smaltz@yahoo.com>
Hollister, CA. USA - Thursday, January 25, 2001 at 00:20:00 (PST)
Hello Ali,
I hope there is a doctor or therpist who can help Alison regain complete control of her memory and concetration on a subject. Her memory has not et been successfully treated from Stanford Hospital, by doctor. They say they are running tests, but how long can that take. I want answers and not the run-around. Please by honest and strsight forward with assessment of my sister nad stop the dilly-dallying. I am read and my sister is readfy for taking immediate actiation to help her in the comming semesters at Cabrillo Colloge in Aptos, CA, and this makes me very upset that more action hasen't been taken in her break from school (that YOU Know about). " She just needs a doctor or neuronjiristist that will help her remember things in a diifferemt way." A way that fits with her new personsonality. So please let the doctor that is in charge of her case make so immediate change before here new classes start.Love,
Melinda Smalt
Mindy <m_smaltz@yahoo.com>
Hollister, CA. USA - Thursday, January 25, 2001 at 00:19:39 (PST)
Hello Ali,
I hope there is a doctor or therpist who can help Alison regain complete control of her memory and czoncetration on a subject. Her memory has not et been successfully treated from Stanford Hospital, by doctor. They say they are running tests, but how long can that take. I want answers and not the run-around. Please by honest and strsight forward with assessment of my sister nad stop the dilly-dallying. I am read and my sister is readfy for taking immediate actiation to help her in the comming semesters at Cabrillo Colloge in Aptos, CA, and this makes me very upset that more action hasen't been taken in her break from school (that YOU Know about). " She just needs a doctor or neuronjiristist that will help her remember things in a diifferemt way." A way that fits with her new personsonality. So please let the doctor that is in charge of her case make so immediate change before here new classes start.Love,
Melinda Smalt
Mindy <m_smaltz@yahoo.com>
Hollister, CA. USA - Thursday, January 25, 2001 at 00:18:26 (PST)
Hi Alison,
I hope you are resting this weekend and not worrying about stuff. You have been through so much and have the sweetest disposition of anyone I know. I just read this little saying. "Don't worry about tomorrow, God is already there". Remember to take care of yourself by eating, resting, exercising and laughing. It's very important that we all keep our priorities strait and staying healthy is number one. I'll see you on Monday at 7:05. Love, Theresa
Theresa McCarter <bulababy@aol.com>
Salinas, CA USA - Saturday, September 30, 2000 at 20:39:09 (PDT)
I am 17 years old an have had PNH since i was 9 years old. I have had my appendix an galblader removed since than. I have come near death due to the appendix (which normal healthy people even die from)
I know for a fact that someday i will no longer have this, an also that it won't be by a bone marrow transplant.... my hopes have always been high an i have always pushed my body to its limets with this.... anyways thanks for your time.
Griver <sephiroth_8583@yahoo.com>
Tucson, Az USA - Thursday, September 07, 2000 at 20:18:14 (PDT)
I'm 20 years old and recently have been diganosed with PNH. If anyone would like to write and share with me any of your
stories or would even just want someone to talk to, please feel free to write to me anytime. God Bless you all!
Sara Tanata <curlysue102@excite.com>
USA - Tuesday, August 15, 2000 at 07:51:22 (PDT)
A friend's daughter was recently diagnosed with PHN
Laurie Rose
USA - Monday, August 14, 2000 at 18:38:04 (PDT)
I am 25 years old and have just celebrated my ten year anniversary with PNH. I am treated at the Cleveland Clinic in Ohio. I am very thankful to live so close to such a wonderful hospital. I am treated every four weeks with three transfusions. I recently have come down with severe vascultis and some major kidney problems. But no matter how bad things get I am just thankful to be alive. I will be graduating college this year and truly believe I have a wonderful life ahead of me. My advice to all Pnhers is to hang in there. Thanks for sharing your story and giving us all a place to read and learn more about PNH.
Melissa <mbn363@cs.com>
Barberton, OH USA - Sunday, August 13, 2000 at 16:54:20 (PDT)
I discovered your page months ago and was just checking to see how things were going for you. I have a son with PNH.Diagnosed in 1990 when a senior in highschool. He is doing great right now...but a BMT is probably in the future.
I will tell him about this page because he has been searching a long time for fellow "pnh-ers".Thank-you for sharing and God bless you. Just a Mother.
Cheryl
USA - Thursday, August 10, 2000 at 18:02:03 (PDT)
I think it is great that all of you have come together.
My boyfriend was diagnosed with apalstic anemia in Nov. of 1996, since then it has been a roller coaster ever since. In May 2000 we visited his hematologist at Johns Hopkins and learned the anemia is gone but he now has pnh. I worry about him incessently. It is a great comfort to read everyone's entry. I feel like we are in a war and the more people I know of in it makes me feel like we can win. Good Luck to all of you fighting and to all of you suffering without the physical effects (family and friends). Take care and God Bless. We can win this battle.
Adrienn Mills <adower@yahoo.com>
morea, pa USA - Friday, June 23, 2000 at 21:09:30 (PDT)
Alison~ This is a wonderful web site. It was great to see you in Stanford looking so well! Hope to hear from you soon. ~David Strathman
David Strathman <d_strathman@yahoo.com>
Ft.Collins, CO USA - Tuesday, May 30, 2000 at 12:05:02 (PDT)
This is a wonderful site, Alison! I look forward to communicating with other PNH patients. I was diagnosed with PNH in 1995, I am almost 32 years of age. I am married with a wonderful two year old son. I can and would love to communicate/share stories with you or anyone else that would like to hear someone elses story and share theirs. I can be e-mailed at applecar@prodigy.net
Tina Cardona-Appleton <applecar@prodigy.net>
Barnhart,, MO USA - Monday, May 29, 2000 at 23:21:36 (PDT)
hello america,
a friend called me, en she told me that there is a list of people with PNH
my name is sandra, and i,m from hOLLAND, I AM 35 YEARS YOUNG.
SINCE 1988 I have PNH, on this time i am very healthy, but there were other times in my life.
i,m a mother of two kids, a girl from china and a son of our own .
before we adopted our daugtther, we lost two babys, when i was 6 mounths pregnant.
when ou like it, you can mail me !
thank oy for your page, and i wish yoy all the best
greetings from Holland
sandra
sandra <de.bronnen@worldonline.nl>
the netherlands - Saturday, May 27, 2000 at 13:14:50 (PDT)
I am so glad to know I am not alone with PNH!! I have been searching for anyone/information for the past 5 years. I am a 38 year old mother of 4 and I was diagnosed with PNH in 1995. It has been a long,lonely road but I; like you; am a fighter;strongwilled and very positive. It's inspiring what you have done Allison. Thank you for opening your heart and life by sharing your personal experience. God bless you!
Melissa White <MZLIPPY001@aol.com>
Pacifica, ca USA - Wednesday, May 24, 2000 at 14:52:49 (PDT)
Hi Allison ! I was thinking about you yesterday and actually came to your website so I could see how things are
going. I love the new pictures...your hair looks so cute ! Hopefully, school is going well- (even Political Science).
You are living proof that attitude and determination contribute to recovery. The sun is out for the first time in a few
weeks and I feel so alive! I think I'm going for a long bike ride. Talk to you soon....I love you
(your cousin Amy)
Amy Glenn <amy.s.glenn-1@ou.edu>
Norman, OK USA - Sunday, March 26, 2000 at 09:30:28 (PST)
Since 1987 I have also PNH. I'm 34 years old and i get a blood transfusion every eight weeks. In the Netherlands this blood disease doesn't frequently occurs, so hope to come in contact with oterh pnh patients. I don't have children because of the high risk.
Don't hesitate to contact me.
I start to make a homepage in Dutch.
andrea <boasinfo@hetnet.nl>
medemblik, The netherlands - Friday, March 17, 2000 at 02:07:55 (PST)
Hi Allison,
I hope your recovery from the BMT continues to go well.
When I was 19 I was diagnosed with Aplastic Anemia which was treated with both cortical and anabolic steroids (prednisone and Anadrol)
I had a positive response to the treatment but developed PNH in the aftermath. This was in 1972. I had several blood tranfusions and was scheduled to receive one on my 20th birthday in 1973. When they checked my counts, they found that they were up and I didn't need one. I haven't had to have one since. This was the best birthday present I ever received.
For about 20 years I continued on lower doses of the Prednisone and Anadrol. I've been very fortunate that my hemoglobin stays at a level between 11 & 13 without transfusions.
Manufacture of Anadrol was discontinued about 5 or 6 years ago and my doctor switched me to a a drug called Danocrine which has worked well for me.
I've lived a near normal life since being diagnosed with PNH. I completed college and have a good career going.
Your story will encourage others with this condition who find your website.
I hope my addition to your guestbook will add a little more encouragement for those who might need it.
Charlie <kltcharlie@cs.com>
USA - Saturday, February 19, 2000 at 20:27:32 (PST)
i just finished reading your original journal you are a very strong young lady...i guess its like i tell my Denise
God only gives this stuff to the strong ones that he know will endure..your father emailed me after reading a message i wrote in dee's web page..i had been unable to find any one else with this horrible PNH. my daughter Denise has has it since she was 20 before then she was a picture of health
never sick only the normal childhood diseases and illness.
you have been through so much my heart goes out to you.
Denise like you is so strong.. she has been getting her transfussion of washed red cells every mo. or 6 weeks for 12 years now...her count is around 7 and her body seems to be use to it being so low . will would like to hear back from you and know that you are doing ok...my prayers go with you...pk
Pam Gibson <Pk4bcgibson@cs.com>
Taft, Ca USA - Saturday, January 29, 2000 at 22:33:12 (PST)
It was really great to see your site. I am *so* happy for you that your BMT has worked out well. I too have PNH (post aplastic anemia). It is wonderful for me to "meet" other people dealing with PNH, people who understand what it's like. Thanks for sharing your story. You, and your brother, are an inspiration.
Silvia Marchesin <smarchesin@home.com>
Edmonton, Alberta Canada - Saturday, January 08, 2000 at 14:56:48 (PST)
You are really doing great Alison. I am updating your page to give it a Valentine's Day Look
Dad
Sunnyvale, CA USA - Saturday, January 08, 2000 at 12:08:17 (PST)
Hi Alison! Glad to hear everything's going well after your BMT. I came across your website while at work, so I can't write too much (have to get back to work...). I was diagnosed with PNH back in 1982 at age 20 (I am 38 now). I looked into the BMT route, but have no compatible donors in my family and there have not been any perfect matches located in the Registry (yet). In the meantime, They have been treating me with immune suppressants such as antithymocyte globulin (ATG), cyclosporine, and currently ProGraf (aka Tacrolimus). I still get red cell transfusions about once a month, though, to keep my hematocrit around 20 - 22. I haven't let PNH run my life, instead I choose to work around it. I finished college, work full-time, got married, go jet-skiing, drag-racing, etc... The key is attitude, and it sounds like you've got a great one. I'm happy you have the opportunity to beat this for good!! Best wishes for the New Year and many years thereafter.
Paul Tavana <xcitmnt@att.net>
Erie, PA USA - Tuesday, January 04, 2000 at 13:05:51 (PST)
Dear Alison, Hi! Hey, hang in there! You've come this far and God loves you a lot and won't let you down. I have
PNH also. I was told I had that last March after being told 2 years before that that I had pure red cell aplasia-a
form of aplastic anemia. My PNH is doing very badly right now, but I have to keep a good attitude! Thank you for
sharing your experience. It's so hard to find others with this disease. If anyone with PNH sees my e-mail to you,
they are welcome to e-mail me also at k-leese@cougarmail.com. I wish you the very best. Keep believing and
know you aren't alone. God loves you!
Kathy Leese <k-leese@cougarmail.com>
Columbus, Ohio USA - Tuesday, January 04, 2000 at 09:34:59 (PST)
merry christmas, good luck in your new home
mary thomas <ninermary@webtv.net>
newman, ca USA - Friday, December 24, 1999 at 18:23:26 (PST)
Hi Alison, I think that your homepage is quite amazing. I had an unrelated allogeniec bmt for cml on 4/93 and find that the information on your website very informative to anyone that is contemplating a bmt. Your pictures are beautiful. Take good care of yourself.
Rich Soucey <Richard.M.Soucey@LMCO.com>
Hamilton Square, NJ USA - Tuesday, December 14, 1999 at 05:43:59 (PST)
I found your web site through BMT Talk. Looks you are doing well. I had a BMT for AML 8-1/2 years ago. I was confind for 1 year after my transplant. I hope everything continues to go well.
Stu
Stuart Cooper, Jr. <scooperjr@aol.com>
Hamilton, Oh USA - Monday, December 13, 1999 at 17:21:03 (PST)
I have PNH too. I've been sick since 1997. I found your pages thorugh Libbey. She lives near me.
You are a brave young woman. I hope I can absorb some of your strenth.
I have felt so alone in this disease. I am happy to have found 2 people now to share and communicate with.
Please email me any time. That goes for anyone else too!
Rebecca
Rebecca <Rebecca270@aol.com>
Salem, Or USA - Tuesday, November 23, 1999 at 10:48:10 (PST)
I was diagnosed with PNH this year also and it is remarkable how different my experience is. I would be happy to share my experience with you if you're interested, just email me!
Libbey Knox <libbey@viclink.com>
Lafayette, OR USA - Sunday, November 14, 1999 at 17:14:53 (PST)
Hello, Alison,
Your website looks great - so do you! I enjoy having you in my self-assessment class. Your friendliness and positive attitude helps to keep the DIALOGUE CHAMBER lively! Keep up the good spirit. Our thoughts and prayers are with you.
Lily
Lily Adams <adamsl@admin.fhda.edu>
San Jose, Ca USA - Tuesday, October 19, 1999 at 22:23:53 (PDT)
HI ALLISON. I'M IN YOUR SELF-ASSESSMENT CLASS. I HOPE THINGS ARE GOING WELL FOR YOU AND THAT YOU ARE GETTING STONGER EVERYDAY. YOU HAVE A GREAT SPIRIT AND I KNOW THAT YOU CAN BEAT THIS THING. LOL RONDA
Ronda McEwen <mcewens4@sisqtel.net>
Etna, CA USA - Thursday, October 07, 1999 at 20:44:19 (PDT)
Sorry there has not been an update to the page in awhile. Just wanted to let everyone know that Alison is doing great. She will shortly have new pictures of her 21st birthday and an all new Journal
Dad
USA - Saturday, September 11, 1999 at 19:58:09 (PDT)
Been wondering how Alison is doing. Does anyone know her current status??
A FRIEND
USA - Thursday, September 09, 1999 at 19:57:12 (PDT)
Hi:) Alison,
I just wan't to say hello and get a newer message in your guestbook. Remember the guest books you made in school where all your friends answered questions you wrote in the book. This will be something you can look back at like that and remember everyone that was there for you.
Love you lots
Mindy Smaltz <m_smaltz>
Hollister, CA USA - Monday, August 16, 1999 at 22:29:49 (PDT)
what a great site,Alison--a friend on AA-MDS-TALK directed me to it--you should be on more links!!--my son Stefano just underwent(June 29)SCT here in Florence--your journal is very helpful--especially since he is having problems with tactile and taste deficit(he didn't have rad,though)--the transplant went well,thank God,the engraftment seems good--he had a lengthy bout of hemorrhagic cystitis,and complete renal block for 1 day.The best to you!
stephanie kramer <kramer@ats.it>
florence, italy - Thursday, July 22, 1999 at 10:52:38 (PDT)
Hi Alison, Your website is great! It is so informative, I thank you for sharing it with us. I hope you are feeling better with
each and every day. You have such a great support system and one can just feel the confidence and spirit that
you possess. Best wishes for your continued daily recovery from this terrible disease! You are a winner!!!!
debbi <kalvin@mediaone.net>
MA USA - Monday, July 12, 1999 at 05:07:00 (PDT)
Hi Alison :-)
I hope you feeling better. Get well soon. I miss you!!
Remember...God does exceedingly things far beyond what we ever ask. Keep up the hard work.
Shirley Muller <Shirley@vegamix.com>
Pacific Grove, CA USA - Thursday, July 08, 1999 at 12:53:36 (PDT)
HI ALISON
THIS IS MY FIRST ENCOUNTER WITH A COMPUTER! mindy is standing over my shoulder, or i
oops1 where did the capital letters go?? WE HAVE BEEN LOOKING AT YOUR WEB PAGE. IT'S
REALLY GREAT.NOW I KNOW ALITTLE BIT MORE OF WHAT HOUR LIFE HAS BEEN THESE
PAST WEEKS/
I'M LOOKING FORWARD TO TALKING TO YOU -----AND SEEING YOU! KEEP IN TOUCH.
LOVE, DOROTHY
Dorothy Mills
Aptos, Ca. USA - Thursday, July 08, 1999 at 11:55:00 (PDT)
HI ALISON
THIS IS MY FIRST ENCOUNTER WITH A COMPUTER! mindy is standing over my shoulder, or i
oops1 where did the capital letters go?? WE HAVE BEEN LOOKING AT YOUR WEB PAGE. IT'S
REALLY GREAT.NOW I KNOW ALITTLE BIT MORE OF WHAT HOUR LIFE HAS BEEN THESE
PAST WEEKS/
I'M LOOKING FORWARD TO TALKING TO YOU -----AND SEEING YOU! KEEP IN TOUCH.
LOVE, DOROTHY
Dorothy Mills
Aptos, Ca. USA - Thursday, July 08, 1999 at 11:53:44 (PDT)
HI, ALISON. THIS IS THE FIRST OPPURTUNITY I'VE HAD TO VISIT
YOUR WEB SITE. (I'M VISITING AUNT LETA). YOUR MOM SAYS YOU
ARE PROGRESSING WELL. LETA, LAUREN, AND I VISITED A SHRINE
YESTERDAY IN ISLE LA MOTTE, VT. TO PRAY FOR YOU. IT WAS A
VERY PRETTY SPOT. ONE DID FEEL GOD WAS CLOSE AT HAND. I'M
GOING BACK TO MA. TODAY. I KNOW YOU WILL BE BACK ON YOUR
FEET SOON.
LOVE, RICHARD
RICHARD LOCKWOOD
N. BROOKFIELD, MA USA - Wednesday, July 07, 1999 at 05:13:46 (PDT)
Dear Allsion
Great web pages! Congratulations, you have great will and strength. Keep it up.
Your new friend
Peggy Mavrinac (CM for Guardian)
Peggy Mavrinac <mavrinac@compuserve.com>
Middletown, NJ USA - Tuesday, June 29, 1999 at 15:01:48 (PDT)
Hi, Alison. I just saw the latest Father's Day pictures. You look wonderful. My prayers and thoughts
are with you for a speedy recovery! I am so glad you are out of the hospital and home with family.
Uncle Bob and Rick send their love as well. I talk to your Mom at least once a week and check your
web page daily to see how you are progressing. I look forward to exchanging e-mails with you again.
Love, Aunt Leta
Aunt Leta <charette@ibm.us.com>
Georgia, VT USA - Wednesday, June 23, 1999 at 12:26:46 (PDT)
Allison, I just want you to know that we at New Hope Community Church in Gilroy have been holding you up in prayer. We are believing God for your improved health and healing. Our Senior Pastor recieved a bone marrow transplant 106 days ago and has returned home to complete his recovery. Take care of yourself and concentrate on getting better.
God Bless.
Dan Gilleland <dangille@pacbell.net>
Gilroy, CA USA - Sunday, June 20, 1999 at 22:22:29 (PDT)
Dear Allison: I work with you gradfather Charlie, who is a dear friend. I have been keeping up with your story and am so glad you are progressing well. My wife is a breast cancer patient and has undergone a bone marrow transplant about 5 years ago now. It was a life changing event. My prayers will be with you for a speedy and complete recovery and I will ask our temple (we are Jewish) to keep you in their prayers as well. Keep up the fight. You are an inspiration to your grandfather and others that hear your story.
Regards
Lou Scalzo, Micrel
Lou Scalzo <lscalzo@micrel.com>
Pleasanton, CA USA - Wednesday, June 16, 1999 at 11:13:15 (PDT)
Congradulations!!!! I hope your stay at the Ronald McDonald house is wonderful and exciting. Before you
know it you will be at Dad's house. With each minute that passes you are closer to your full recovery.
Keep your spirits up. Rehabilitation won't be that bad.
Love Mindy
Melinda Smaltz <m_smaltz@yahoo.com>
Hollister, Ca. USA - Tuesday, June 15, 1999 at 16:08:34 (PDT)
Hello Everyone,
This is Mindy, Alison's sister. I have spent the first half of the week with her, and she is in good spirits.
Our Dad is out of town this week. He will be back this weekend and will update Ali's web-site when he returns.
It looks like Alison will be moving to the Ronald McDonald house on Monday or Tuesday of next week. She will
begin her Rehabilitation here, and it will continue at my fathers house.
Love You Lots Ali
Love,
Mindy
Melinda Smaltz <m_smaltz@yahoo.com>
Hollister, Ca. USA - Friday, June 11, 1999 at 16:08:06 (PDT)
Hello Everyone,
This is Mindy, Alison's sister. I have spent the first half of the week with her, and she is in good spirits.
Our Dad is out of town this week. He will be back this weekend and will update Ali's web-site when he returns.
It looks like Alison will be moving to the Ronald McDonald house on Monday or Tuesday of next week. She will
begin her Rehabilitation here, and it will continue at my fathers house.
Love You Lots Ali
Love,
Mindy
Melinda Smaltz <m_smaltz@yahoo.com>
Hollister, Ca. USA - Friday, June 11, 1999 at 16:07:27 (PDT)
So glad to hear you are doing better. Homeward bound, that is wonderful news. What a strong and positive
thinking person you are. You are a fabulous role model for those going through similar stuff. I can't wait to see
you when you can have company. XOXOXOXO Love Katie
Katie Perry <katiep@sco.com>
Santa Cruz, CA USA - Friday, June 04, 1999 at 08:45:37 (PDT)
hi ali.
remember , keep your strengths. See you home soon, cheerful and smiling.
best wishes.
amit
amit <foramit@hotmail.com>
CA USA - Tuesday, June 01, 1999 at 02:51:09 (PDT)