Journal
This is my new Journal. It was created to allow me to more easily
update my journal without having to update the complete web site.
December 12 th 2001
Today I finished my last final so now I can relax for awhile. I have another full schedule ahead of me for my winter semester. I will use my break to get some rest so I can have energy for later on. I am so glad the semester is over. I get so tense when I have to take test, but now it is over and done
with for the time being.
Alison
Alison
Holister, CA USA - Wednesday, December 12, 2001 at 16:39:33 (EST)
December 11th
Yesterday at 4:30 in the morning I had a seizure. I was able to feel it comming on so I woke Ray up. He was able to give me a pill to slow it down do it would not go into a gran mal seizure. He called 911 and I went to the local hospital, and was later released. I had an appointment that day with my nuerologist. When I saw my nuerologist he said my level for my Tegratol was low so he bumped me up another pill.
Today I am a bit groggy from yesterday, but otherwise doing well. I have my finals this week so I am busy with school as well.
Alison
Alison
Holister, CA USA - Tuesday, December 11, 2001 at 12:44:48 (EST)
December 5th 2001
I have been doing well the last couple of weeks. I am in the process of finishing up with this semester. I have been busy studying for my finals that I am going to be taking next week. I have been making good grades this semester, so I am very happy. Otherwise, I have been doing great!
Alison
Alison
Holister, CA USA - Wednesday, December 05, 2001 at 10:37:40 (EST)
November 23, 2001
My new website is finally fully operational.
Alison
Holister, CA USA - Wednesday, November 21, 2001 at 21:24:38 (EST)
9-26-2001
I have been busy with my online classes. The classes have kept me plenty busy with the reading assignments as well. I am taking a variety of subjects that are interesting as well. Well I better get back to my reading!
Alison
Alison
Holister, CA USA - Wednesday, September 26, 2001 at 12:15:53 (PDT)
9-22-2001
I am doing better today my throat feels better, and I am able to sleep alot better being able to breathe. I am starting school on Monday. I am looking forward to that because it will take my mind off of everthing and let me concentrate on other things. The meds seem to be working well so that is a positive thing, but I still go into times of depression, because from the outside I look like a healthy person, but there are always going to be medical problems t might arise. I always ask myself everyday if today is going to be the day that something is go to happen. I seem to have that little voice in my head telling me take precautions that might effect my health or put my life in jepordy. I keep a positive outlook on life, and try to be around people whom support me. I believe my latest seizure was due to a onset of strep that might had caused it.
Alison
Alison
Holister, CA USA - Saturday, September 22, 2001 at 15:40:20 (PDT)
I had a gran mal seizure on Thursday the 15th. Ray and I wrere at Costco, and I had a weird feeling that was comming over my body. I know the feeling because that is the feeling I have before I seize. I get a metalic taste in my mouth, and I feel as though I am in a dream state and everything seems to slow down. So once out of the store I told Ray my body felt numb, and that I felt it comming on so I took my hair clip out, and Ray told me to take deep slow breathes. I continued, and then I had started to seize. Ray called 911, and the paramedics came. I was rushed to the hospital. While I was in transit I had a temp of 103. I had seized for about a half an hour. While at the hospital they had to give me a spinal tap to make sure I did not have meningitis, but that test came back negative. The dr.'s also had to perform a CAT scan as well. I did not become conciouss up till about three in the morning. So today I will be going to Stanford to see my nuerologist to see what he can do to help prevent these seizures from comming on.
Alison
Alison
Holister, CA USA - Monday, September 17, 2001 at 11:10:10 (PDT)
Sept. 7th 2001 My Brthday!!!!
Today is my brthday I am 23 years old........Seems like time flies by really quickly. Tonight Ray and I will be going out for a nice dinner, and enjoy the day.
Alison
Alison
Holister, CA USA - Friday, September 07, 2001 at 08:30:14 (PDT)
August 31st 2001
Well I am still having troubles with my anti seizure medicen (Dilatin) it is causing me to have mood swings. One minute I will be happy and the next I will be in tears or vice versa I will be moody. I have a feeling it is due to my estrogen and the dilatin reacting against one another. I sometimes feel as though somone else is in charge of my body and I am along for the ride. On the 24 th of Sept. I will be getting my test reults back from my EEG, and see what other meds the dr. might be able to put me on. Well I have a week till my 23rd B-Day. I can't believe I am another year older...I feel like I stil sixteen!
Alison
Alison
Holister, CA USA - Saturday, September 01, 2001 at 14:54:53 (PDT)
August 18, 2001
Last week I had an EEG on my brain to see why I keep having seizures. The last one was in July in my class. When I had awaken that day I was in the emergency room. I hope they can figure out what is misfiring in my brain to correct it. At this point I am on Dilatin. They have reduced my dose because I was gettting drowsy with the heavier dosage.
Alison
Alison
Holister, CA USA - Saturday, August 18, 2001 at 16:37:59 (PDT)
July 30th 2001
Well my wedding was beautiful! everything was wonderful. I had the best time with my family and frinds to enjoy the celebration between Ray and I. I had the best time dancing with the two men most important to me (Ray and my Dad.) I am so glad that I am able to be here today, and enjoy my life to the fullest. I feel I have endured most aspects of life, and I hope others around me will also learn and grow with Ray and I. We have been thru the best and the worst of times and we are looking forward to the comming years. I thank everyone whom have kept us in thier prayers. Well we are off to Hawiii tommorrow to enjoy our honeymoon.
Alison
Alison
Holister, CA USA - Monday, July 30, 2001 at 21:17:36 (PDT)
On July 17, 2001 I had a seizure in my math class. I was transported tot the local hospital. I was unconciuss for a couple hours. I will be unable to drive for six months. So today I will see my nurse practioner to check my dilaatin level, because it makes me feel drowsy all the time.
Alison
Alison
Holister, CA USA - Monday, July 23, 2001 at 12:58:55 (PDT)
Hi Alison, I hope you are doing fine.
I´m Writing from Chile, my 2 year old nephew has just
been diagnosed of PNH. We are very sad, but I see you and I think everything will be fine.
Good luck!!!
Patricia
Santiago, CHILE - Saturday, July 14, 2001 at 23:42:22 (PDT)
Hi my Name Troy and I have recently been been dignosed as having hepatitis C this frighened me. I have since read as much as I could it and the darkness har gone. I wish you all the best. Life is good. Troy.
Troy
Dublin, Ireland - Monday, June 25, 2001 at 17:01:23 (PDT)
4-21-2001
Yesterday was my two year post transplant birthday. I have been doing well, and have not had any problems. I have been busy with school, and work. I am glad that I am doing well in regards to my health. I look forward for my years ahead of me.
God Bless,
Alison
Alison
Holister, CA USA - Saturday, April 21, 2001 at 11:03:15 (PDT)
Check out my new Photo on page 1
Alison
Holister, CA USA - Saturday, March 17, 2001 at 16:19:05 (PST)
3-17-2001
Well the wedding plans have been going along step at a time. Ray and I both met with the minister, and he was very friendly. We now just have to put all the tasks togther. As for school I am doing well. I have been working part time as a teacher's assistant, and have noticed I am really great working well with others. I think that I would make a wonerful teacher. I am going to finish getting my A.S. degree, and then transfer to a U.C.
Alison
Alison
Holister, CA USA - Saturday, March 17, 2001 at 09:15:04 (PST)
2-3-2001
Well I am getting ready to go back to school on Monday. I am going to be taking an aerobics class, and a Head and Neck class, as well as some study skills courses oh yeah and a Philosophy class. I will be going everyday including Saturday. I hope these classes will help me be more successful in my future of education. I do worry at times that I may never be fully recovered, but I guess you have to deal with and make up for it. On the other hand I will be very busy planning my wedding.
Alison
Alison
Holister, CA USA - Friday, February 02, 2001 at 10:50:08 (PST)
1-22-01
I have been busy lately planning my wedding. I have picked out a beautiful dress along with a georgous veil. I am planning on having a lot of people to attend our special day where we our celebrate our commitment of a whole life together. I am very excited to unite both families togther to meet as well. I am going to have people fly in from all over for our wedding. I will post pictures once they come available.
Alison
Alison
Holister, CA USA - Monday, January 22, 2001 at 08:15:51 (PST)
12-10-00
Yesterday Ray and I went to my Grandfathers birthday party. I had a fun time because all of his friends were there and we all had a good time. I am happy I was able to spend his birthday with him because he is very special to me.
Alison
Alison
Holister, CA USA - Sunday, December 10, 2000 at 09:58:59 (PST)
11-14-00
Today I went to Stanford my four month check-up, and everything looked great in regards to my health. I got my last series of immunizations that consisted of Hep B, Influenza, Polio, Flu vaccination, Hemopholus Influenza. I had a shot in both of my arms. School has been a bit challenging for me at this point because I am still dealing with the Cyclopsorine toxity. I hope it will eventully go away so I can have full use of my brain again. I get frusterated a lot because I feel as though I do not have the capabilities that other people have. I sometimes feel as though people think I am stupid, but they do not know my circumstance. Well I will now give my blood results that are extremely great!
WBC 4.0
RBC 4.24
HGB 13.5
HCT 38.8
PLT 153
I am really happy fot these bloodcounts because they look terrific, and my platlettes are very high as well.
Alison
Alison
Holister, CA USA - Tuesday, November 14, 2000 at 13:16:24 (PST)
10-30-00
The last couple of weeks have really taught me a lot about using my inner strength. Somethings in life do not always work out as you plan. My goals inl life might be postponed, but my will, and faith in God will help me with them.My mind might be slow, but I am not going to allow myself to believe that I am not capable of doing things. I have won one battle, and it seems as though I will have to fight to win the battle to become a Dental Hygienist. I know God is listening, and is watching over me. So I hope and pray I will be able to accomplish this battle with him, and might in the process be able to help others.
Alison
Alison
Hollister, CA USA - Sunday, October 29, 2000 at 15:34:02 (PST)
9-25-00
I found a very nice girl in my class that has been helping me with the concepts that I do not understand. I am going to take my second P.T on her. She is great becasue she stayed after class with me today to practice for my re-take on my 1st P.T. I now can comprehend what I was not seeing before. I am glad that the instructors are helping me out a lot. I will be able to have a longer time to take my tests. That will help me out a lot becuase sometimes my mind goes blank, and get confused. Well I better get back to studying for my classes.
Alsion
Alison
Holister, CA USA - Monday, September 25, 2000 at 18:46:39 (PDT)
9-23-00
Today I am going to be studying for my P.T., and study for some quizzes, and exams that are comming up next week. I feel frusterated becuase of my learning disabilty. Some of the concepts do not make sense to me, and it takes me twice as long to learn things. I have a wonderful instructor who has helped me get the help I need, and the support. I feel she has a wonderful gift to help me. i am getting really hard on myself when I do not get the grade that I studied so hard for. My mind is just not how it used to be, and that is why it is so frusterating because of the short- term memory from my Cyclosporine toxity to my brain that had happened to me when I was put into the ICU. I am going to work as hard as I can to concor my disability.
Alsion
Al
Alison
Holister, CA USA - Saturday, September 23, 2000 at 09:22:32 (PDT)
9-7-00
Well today is my 22 nd birthday! I had to got to school today for my X-Ray lab. The girls in my class had made me brownies and put a Birthday flier on my locker. I have made a lot of new friends in the program. I feek it is going to a little difficult becuase some of the work is very involved which requires a lot of reading, and memorization. I have a quiz almost every week on the subject matter. Otherwise tonight Ray is going to take me out to dinner tonight.
Alison
Alison
Holister, CA USA - Thursday, September 07, 2000 at 16:43:46 (PDT)
8-26-00
Well just two more days till school starts....I am a little nervouse, but excited! I am taking 18 units of very hard material. I have a wonderful group of classmates that I look forward to studying with. I have a carpool group with two other ladies that will help with the commute to school. I am glad that I have met some really nice people in my class becuase they are comming from all over the place like Sacramento to San Jose all over the place. I am glad that I live a little closer to the campus. Tommorrow Ray and I are going to go to church since we have not been for quite awile.
Alison
Alison
Holister, CA USA - Saturday, August 26, 2000 at 10:21:39 (PDT)
8-21-00
I have been very busy getting ready for school I have to have my eyes checked our, and finish buying my school text books as well as getting my carpool ready. I am still a little nervouse but very excited too. I heard the first Semester is hard becuase there is a lot of quizzes, and just getting familiar with the program and the schedule. The key thing that I will have to do is keep a tenative schedule for study time, and my own time. The teachers have told us for the next two years we will not have a life with this progrm. The first Semester I am taking 18 units. So I will be very busy!
Alison
Alison
Holister, CA USA - Saturday, August 19, 2000 at 13:57:01 (PDT)
8-12-00
Today I went to a funeral of a friend of mine from Junior High, and High school. The funeral home was packed with many of my friends from High School. My friend that passeed away was in a car accident becuase he did not fasten his seat belt correctly, and alchol was involved. I feel for his family becuase I can imagine the loss, and pain that they have. I will remember him,and keep him in my thoughts. Sometimes funerals are hard to go to but I know the lord is going to watch over him and his friend that were in the accident.
Alison
Alison
Holister, CA USA - Saturday, August 12, 2000 at 12:55:51 (PDT)
8-9-00
Yesterday I bought some of my books for the Dental Hygiene program. I am getting ready to start school in the Fall. I am a bit scared, but I guess when you do something new you always are until you learn the ropes. It is only two more years of school so I have to look at what the present has in store for me.
Last week Ray and I and his Uncle went to the Autolite nationals, and stayed at his Mom's house for a couple of days. While we were staying at his Mom's we went to church, and the Pastor pulled me out and said a prayer for me. I was very touched it meant a lot to me because everyone in the church was always praying for me in thier prayer groups.
Alison
Alison
Holister, CA USA - Wednesday, August 09, 2000 at 09:35:58 (PDT)
7-26-00
Well today I am trying to finish up my Final for my Summer school because on Saturday is the party for all the new Dental Hygiene students. I am trying to get my test out of the way so I will be able to relax for the rest of the Summer. I am looking forward to the party on Saturday because I will meet my teachers, and the other students that will be in my class.
Alison
Alison
Holister, CA USA - Wednesday, July 26, 2000 at 16:05:58 (PDT)
7-21-00
I was looking back at my pictures from last year, and it is amazing how much hair I have grown. I also am a lot better than a year ago. I can't believe it has been about a year and 4 months ago I had to go thru that. I am really glad that I am doing a lot better now, and feel great. I am prayimg that I will never have to go thru something likr that again.
Alison
Alison
Holister, CA USA - Friday, July 21, 2000 at 12:47:48 (PDT)
7/11/00
Today I wen to Stanford, and had my Tetnus shot, My Hepititis shot, and a few other shots. I got my blood work back, and it was the best one I have had in a long time.
WBC 6.4
RBC 4.40
HGB 14.5
Platletts 206.....this is the best blood counts that I have had in a long time. I am so happy with these results! Now I have to go back every 4 months instead of every other month. It looks like things are improving, and I am feeling bettter too!!
Alison
Alison
Holister, CA USA - Tuesday, July 11, 2000 at 15:22:04 (PDT)
Yesterday Ray and I went shopping to buy my uniform for the Dental Hygiene program. I had to be fitted for my jacket, and try on the white pants I need for clinic as well as shoes requires for the program. Yesterday I also had to get some of the misc. supplies for the program. I have to go to Stanford tommorrow for my check-up appointment as well as have my first Hep B shot for the program. So I will have some shots tommorrow. I am looking forward to starting the program. I am nervouse, but I am aware it will require a lot of work. I am willing to take on this big job becuase this is what I have been studying so hard for. So I have to stay on top of things in order for my dream to come true!
Alison
Alison
Holister, CA USA - Monday, July 10, 2000 at 12:09:44 (PDT)
I have been very busy with my internet class that I am taking this Summer. I just got back from Oaklahoma for my cousins wedding. It was a beautiful wedding, and reception. At the reception everyone let off butterfly's. It was nice because I was able to see all my cousins, and my GranMother. The trip was nice to get away for awhile. I am starting the Dental Hygiene program at the end of August. I have to get all of my shots as well as my Hepatits B shot, and show proof that I test negative for Tuberculosis as well as send in my Medical history. So there is a lot in preperation for the program. I have an orientation on the 29th of July, and the theme is western so I guess I need to take out my boots, and cowgirl pants...HAHa! it should be fun. I get to meet my senior buddy! The Seniors are putting it on for the Juniors (I am considered a Junior) I am looking forward to that.
Alison
Alison
Holister, CA USA - Thursday, July 06, 2000 at 13:26:59 (PDT)
6-21-00
I have been doing great! Yesterday Ray and I went out to dinner with one of my dear friends. It was great to finally see each other because we keep on making plans, but they never seem to go thru. So finally we saw each other. Otherwise, I am starting Summer school on the 26th of this month I will be taking Political Science on the internet. So that will keep me busy this Summer.
Alison
Alison
Holister, CA USA - Wednesday, June 21, 2000 at 12:01:34 (PDT)
I am still swollen in the legs and hands. I had an MRI of my chest, but it looked fine. The Dr.'s were baffled because everything looks fine; including my liver, pancreas,etc. Even my blood counts look great. I talked to them today, and they think it is my hormones. They want me to call my endocronologist to see if it is the medicine they are using for my hormone replacement. They might need to change it to a different one.
Alison
Alison
Holister, CA USA - Monday, June 12, 2000 at 17:25:18 (PDT)
6-2-00
Yesterday I had an appointment at Stanford all my blood works looks fine, but I have still been swelling in my legs. The dr.'s are baffled because everything looks fine including my liver, and all the other organs. The olan they have now is have an MRI of the chest of the main arteries to see if there is any blockage to why I am retaing the water. I hate MRI's because I am clausterphobic. I broke down in tears, but the nurse practioner gave me a hug, and said not to worry because they are not worries they just want to find out what is causing the swelling.
I have posted my blood work:
WBC:6.7
RBC:4.10
HGB:13.1
HCT:37.7
PLT:184
All these counts are terrific there was not a flag on any of them! I was very happy with these results.
Alison
Alison
Holister, CA USA - Friday, June 02, 2000 at 09:08:59 (PDT)
5-23-00
Today I can start driving again! I am very excited, but the thing is I have really no place to go now because I am not in school right now because I am on Summer vacation. At least it gives me a peace of mind that I am able to since the time has passed from my seizure. Now that it is getting hot we are getting lots of spiders, and ants. We got ant, and spider repelents. So hopefully it will help with the bugs.
Alison
Alison
Holister, CA USA - Tuesday, May 23, 2000 at 10:34:55 (PDT)
5-22-00
Today I am tying up some house cleaning as well as tying up some homework for one of my classes. It has been hot over here it reached 101 degrees yesterday. So we are getting an air conditioner to put into our place. Hopefully that will help us cool down this Summer. Expecially since I am going to do internet Summer school.
Alison
Alison
Holister, CA USA - Monday, May 22, 2000 at 12:58:32 (PDT)
5-11-00
Today I got a letter from the head of the Dental Hygiene dept. to say I am exepted in the program, and that I need to fill out a questioneer of who I want to be my Senior buddy. So that is exciting to finally be able to get my foot further in the door. I also found a nice lady that I could commute, and study with in the program. I also got my perscription today for an estrogen supplement. Ray, and I just had our 5 year anniversary on May 10th. I also signed up for my Fall classes today.
Alison
Alison
Holister, CA USA - Thursday, May 11, 2000 at 18:15:32 (PDT)
4-26-00
Today at the hospital was a long appointment. The dr,s still could not figure out why i am swelling. My blood work looks like normal. I am very happy with that.
WBC: 5.9
RBC: 4.16
HGB: 13.3
HCT: 39.2
MCV: 94.3
MCH: 31.9
PLT: 186 normal is 150-450 Yeah!!
My other tests were fine as well. My liver, and all my other tests were fine as well. So now I need to get rid of all this edema (water swelling.) I have to go back in a couple months.
Alison
Alison
Holister, CA USA - Wednesday, April 26, 2000 at 16:26:45 (PDT)
4-26-00
Today I am going to Stanford for my one year anniversary check-up. I also am going to see an eye doctor, and a endocronologist. I am still retaining water my shoes are difficult to put on, and my hands are swollen. I will need to bring that to my doctors attention. I hope it is nothing serious. So it will be a long day at the hospital.
Alison
Alison
Holister, CA USA - Wednesday, April 26, 2000 at 07:34:48 (PDT)
4-20-00
Today marks my One year anniversary from my Bone Marrow transpalnt. I am so thankful I made it thru. It was not easy the whole time, but I learned that prayers, and support help out a long way. I look back, and I see all what I have accomplished. I am lucky so I should always remember that I am a survivor, and yet I will come into problems in my life, but I have to remeber I can do, and I can achieve all my goals that I set for myself. So I thank everyone for keeping me in thier thougths, and prayers during that time in my life.
God Bless,
Alison
Alison
Holister, CA USA - Thursday, April 20, 2000 at 08:47:40 (PDT)
Subject:
Chicken Soup for the Soul: Home Delivery
Date:
Mon, 10 Apr 2000 00:10:36 -0500
"Chicken Soup for the Soul: Home Delivery"
I recieved this from Chicken Soup for the Soul; it is very touching. I felt I would share it with you.
Alison
Mirror, Mirror on the Wall
When I look into the mirror I see a survivor.
I don't think about anything but living.
Well, that's not true because the farther I get from my disease, the
more hopes and dreams I let creep in. When I looked into the
mirror during my illness, I wasn't that bald person staring back
at me. I didn't recognize myself.
My body had let me down, but I didn't want my soul to
escape.
People responded to the way I looked.
I hated the pity I saw in their eyes as much as the fear.
The body is back to its original state, but the soul has taken
on the wonderful layers of a survivor.
Now I celebrate
Bad-hair days
Bushy eyebrows
Stubbled legs with razor burn.
I celebrate
Blended flavors of peanut butter and chocolate
Sweet lemonade through a straw
Greasy hamburgers with bacon.
I celebrate
Whining children
Shouting and arguing
Pulsating music and barking dogs.
I celebrate
Making plans
Dreaming
The hoping that goes with having a future.
I celebrate life.
Written by: Karen Klosternman was sent to me from Chicken Soup for the Soul
S
Alison
Holister, CA USA - Friday, April 14, 2000 at 10:50:30 (PDT)
4-14-00
I have been busy with school work lately that is why I have not written in a long time. I am on my Spring break right now. I am not going to do much just relax, and try to sleep in. My semester is almost over. So I am excited, exept I am taking an internet class so I have those assignments till June. I am going to be taking Summer school this year as well to complete my general education. I can't belive in the Fall I will be entering the Dental Hygiene program. I am a bit nervous, but everyone is the first day. It is goign to be the day that I have worked very hard to get to. So I am also filled with a lot of joy. The last year since my transplant has had a lot of big changes. I am glad that I came out of the transplant fine. The thing is that I will remeber it for the rest of my life. It had affected me as well as the people around me. So I do at times remeber the time in the hospital, and get a lump in my throat, but I have to realize I am a survivor.
Alison
Alison
Holister, CA USA - Friday, April 14, 2000 at 10:38:14 (PDT)
4-7-00
I am going to be taking a Cultural Anthropology class on the internet. This Summer I want to take Political Science over the internet. So I am excited that I am taking this class. It looks interesting and fun. This weekend I need to finish some school work,and try to relax. I need to just set aside some time out of my day for alone time, and focus on myself so I won't worry about everything. I need to put some perspective, and reality in my life that I can only do so much in one day, but not let things get me down like having a seizure. I have to look at it as my body is telling me to slow down.
Alison
Alison
Holister, CA USA - Friday, April 07, 2000 at 09:28:57 (PDT)
4-3-00
Today I went to my neurologist, and viewied my MRI, and CAT scan, and said it did not sound like a normal seizure. My MRI scan showed that my brain looks a lot better than it did when I was in the ICU. He said the scan did not show any trauma that a seizure could have have done. The good thing he said is that I look good from the last time he saw me in the ICU. So I feel a little better today that I know a little more about what is going on in my head. He said it was probably brought on by stress. So I will keep praying for the lord to watch over me.
Alison
Alison
Holister, CA USA - Monday, April 03, 2000 at 21:49:31 (PDT)
4-1-00
Happy Aprils Fools day! I cannot believe it is already April. April 10th will be a year from my transplant. I am still dealing with the idea that I had a seizure, and it all happened in a blink of an eye, and I do not remember any of it. guess it is a way of my body reminding me of how important my health is, and not to let stress get in the way. So I hope I will be able to relax the rest of the weekend.
Alison
Alison
Holister, CA USA - Saturday, April 01, 2000 at 19:38:14 (PST)
3-30-00
I want to thank everyone for there support after my seizure. It just shows to shpw how your life can change in a blink of an eye that can affect you for the rest of your life. I am glad that a lady in one of my classes was able to position me properly before the paramedics could arrive. I had a girl in my speech class that saw me being transported into the ambulence since the class that I had the seizure was in the middle of the quad. I feel a bit embarressed, but I guess I will look back one day and hopefully laugh about it. I just hope there won't be another one.. So I thank everyone for there support and prayers.
God Bless!!
Alison
Alison
Holister, CA USA - Thursday, March 30, 2000 at 18:02:31 (PST)
3-28-00
I got a phone call from my nurse parctioner last night regarding my MRI, and she said that they need the Nuerologist look at the CAT scan and compare the two, and see if they can figure out why I had the seizure. I am taking 3 anti seizure meds a day. Last night I had a temperature of 104.8. I am really mad all this happenend. It feels like once I get ahead something bad happens. I am not trying to be hard on myself, but I feel I have no control of my body.
Alison
Alison
Holister, CA USA - Wednesday, March 29, 2000 at 06:48:00 (PST)
3-26-00
Well I feel a lot better than on Thursday when I had a seizure. I still do not remember anything. I guess it is better that way. As for school I am trying my hardest, but I have to just take it day by day and see what happens. I am just hoping things will get better with my health. I have to go to Stsnford on Monday for an MRI, and they want to also do an EGG on me. So mabey that will answer some questions.
Alison
Alison
Holister, CA USA - Sunday, March 26, 2000 at 14:04:07 (PST)
3-25-00
On March 23 I had a seizure in one of my classes. The thing is that I do not remember anything from that. I was rushed to an emergency room where I did not become coherent for a long time. I still did not know why I was there, and how I got there. The thing now is that I won't be able to drive for at least six months. I have been taking it very hard. I feel like I have no control. I try to look at the bright side of things, but it is hard to do. I guess what I need to do is put my head up high and realize I am a person, and I am able to make human error.
Alison
Alison
Holister, CA USA - Saturday, March 25, 2000 at 09:02:36 (PST)
3-22-00
Today I went to school early to take a test in my CPR class. It was pretty easy! Today I am working on my Speech about bone marrow transplants. I am printing some of the pictures out of my me while I was going thru it. I hope thid Speech will help people find out more about how the procedure is done. It is sometimes difficult to explain the whole thing to people, but I know I will be great speaking of this topic because it is a topic that I know very well.
Alison
Alison
Holister, CA USA - Monday, March 20, 2000 at 14:00:40 (PST)
3-17-00
I haven't written for awhile because I have been busy with school. It is getting pretty stressful right now because of all the mid-terms that are comming up next week. So I have been studying hard! I am right now working on a speech for my speech class that will describe a Bone Marrow transplant. I hope this might inform people of what exactly a Bone Marrow transplant is. So I better get back to my work on studying.
Alison
Alison
Holister, CA USA - Friday, March 17, 2000 at 11:14:31 (PST)
3-10-00
This week has been busy for me. I am working on a speech. I am going to persuade people to donate blood. I also have to study for Politcal science. That class seems to be my hardest. I am goin g to go and talk to my proffessor to see if there is a way for me to study for his exams so I will do good in the class.
Otherwise I am feeling healthy, and looking forward to Spring break, but I do not have any plans just relax. I am glad to help any one with any questions regarding PNH. I can't believe this comming April will be a year since my transplant. Time sure seems to fly. In my Re-entry for women class was time managment. We had to say what we thought of time. I said, " When I had my transplant I had no concept of what time it was or the day of the week." I am happy that my transplant has been great!
Alison
Alison
Holister, CA USA - Friday, March 10, 2000 at 08:55:25 (PST)
2-28-00
Well today I am going to study for my big exam tommorrow in Political Science. This weekend was kinda bad. The Axle in my car broke, and found out I need new tires. I got a nail in one of my tires. So it feels like everything is kinda going chaotic in my life. Although I try to compose my self, and try not to let this get me down. One thing is that I want to mention is people need to at least try to understand you before they try and interpert you as an individual. Everyone is not the same, and need to be treated in certain manners. I know with my transition with moving out has hurt people, but it is on there part to be happy for me as well. It was a couple months ago where I might have not been able to accomplish all that I have. I need the benifit of the doubt at times. I feel though it might be hard for people to realize all I have been trough, and expect me to be the same person I was before I had the transplant. I have changed. I feel I am more knowledge, and have set some goals for myself, and I do ask people to see me who I am now, and be there for me, because every day changes. We are always going to have changes in our lifes.
Alison
Alison
Holister, CA USA - Monday, February 28, 2000 at 10:42:11 (PST)
2-25-00
Today I am so happy!!! I got my letter of acceptance in the Dental Hygiene program. I feel like I am getting my life back! I feel like all my dreams are comming true. For now I have to concentrate on my school work for this semester. I have a big exam on Tuesday. I will be studying for that this weekend. I am also happy because I got an A- on my Speech!!! so there is hope. I feel these classes I am taking now will help me for the Fall when I start the Dental Hygiene program.
Alison
Alison
Holister, CA USA - Friday, February 25, 2000 at 13:29:50 (PST)
2-21-00
Happy President's Day. I have the day off school. I am Happy with that because now I have more time to study, and practice my speech. I give my speech tommorrow. It is nice to have a day off. On Saturday I had my sister over for dinner. I made Hamburger Helper...
On Friday I got my first haircut since the transplant. I like it, it has some style to it now. When it is growing back it is comming in at all different lengths. So I told the lady cutting my hair to trim it out so it can grow. Let me tell you you don't appreciate your hair till you do not have it. When I was bald it did not bother me that much. I guess I just made it part of me. I bought some wigs, but I never put one on. I guess you have to appreciate who you are than obsess over little things.
Alison
Alison
Holister, CA USA - Monday, February 21, 2000 at 08:23:09 (PST)
1-18-00
Today I am going to practice my speech for my speech class. I am going to do my speech on Alopecia (Hair Loss.) Since we have to use props I am going to bring in my wigs, and pictures of me when I lost my hair during my transplant. I feel this topic will catch the eyes of the audience as well as being informative. I am looking forward to giving this speech.
I wrote this poem last night for one of my classes:
"Who Am I?"
I am not skinny.
I am not fat.
I am not a beauty queen.
I like myself.
I like the body that I carry.
I like the scars, and memories of my past.
I like myself because nobody shares the
same feelings that I have.
I wish people would try and understand me.
Why?
Because they would notice, and understand who I am.
Alison
Alison
Holister, CA USA - Friday, February 18, 2000 at 08:28:12 (PST)
2-14-00
Happy Valentines Day!!!! I went to school today, and had a skills tests in my CPR class. It went O.K. Right now I am studying for my Political Science class. I am going to have an exam soon. So I am trying hard to stay on top of things so I won't get behind. Tonight for Valentines Day I made a chicken csserole, and cake. So it will be nice to stay at home in a cozy house rather than going out in the windy rain. I am feel great health wise!! Like today, everyone was worried about me driving to school in the rainy storm. I told them the only way I can get better is do things on my own. Look, I did it with out a problem. It is the little steps that will reassure me that I can do anything. One reason I know this is because I still know that deep down inside me. Although there is times that I do need a cry, but it might be from all the medication I am on. I am not saying it is bad to cry, but it does help at times.
Alison
Alison
Holister, CA USA - Monday, February 14, 2000 at 14:29:28 (PST)
2-11-00
Today I wen to Stanford and had great blood counts:
WBC: 4.2 (norm is 4.5)
RBC: 4.11 (norm is 4.0)
HGB: 13.3 (norm is 12.0)
HCT: 40.7 (norm is (36)
MCV: 99.1 (nowm is 81)
MCH: 32.3 (norm is 26.5)
PLT: 141 ( Norm is 150)
So I am pretty happy with these resuts!!
Alison
Alison
Holister, CA USA - Friday, February 11, 2000 at 16:31:29 (PST)
2-5-00
Today I invited my Mom to Coffee, and to lunch at my new place. I cooked a pizza. So that was nice. Then I went to take her home and cleared out more of my stuff. So tommorrow Ray and I are going to his brothers new house in Newman. So it will be nice to see what their brand new house looks like. We were there to see it from the start being built. Tonight I will finish up my paper for Political Science.....Ughhh! Oh well a girls got to do what a girl has to do.
Alison
Alison
Holister, CA USA - Saturday, February 05, 2000 at 15:46:06 (PST)
2-4-00
Last night I had some difficulty sleeping. I was pondering on what topics I should do for my Speech, and what topic I should write for my Political Science paper. I told myself that I will find an answer in the morning. So I woke up at 7:45 this morning with some great ideas. So now the hard part is putting everything together. It is strange how little things in life will stress us out. I learned in my College Success class that stress can take a toll on your body. We just went over a chapter that told ways to manage Stress. We got into groups and discussed different ways that we deal with stress. That was very helpful. The teacher wants us to keep a journal about things in our life that might cause us stress, and any problems with school. That is a nice excersize because it helps me reflect on what I consider stressfull, and improvements I am making. Sometimes we don't take a couple of minutes from our day and realize that there has been acievements and strengths in our every day life. On the other hand there is some rough waters. I know that for sure. I feel those times are what make us who we are today. They might not be easy, but that is what makes us unique....nobody else sees the world as we do. If anything I believe all the struggles in my life have made me strong and ambitious. I usually set my mind to something and I will usually get it. To sum it all up I believe there are endless possibilities in each and everyone of us. So set a time in your day to reflect on all you have accomplished. You would be surprised! Also smile......that eases stress, and if something is bothering you talk to a friend or you might need a cry. All those tactics I learned in my class. The one major one I liked was alone time. That one made a lot of sense we all need to unwind, and get are thoughts together!
Alison
Alison
Holister, CA USA - Friday, February 04, 2000 at 15:53:04 (PST)
2-2-00
Today I went to school, but during the day I got an e-mail from a girl in my PNH support group. She made an important statement after viewing my homepage that it is sometimes greatful for what we have and look what the worst looks like. As I said before I hope my homepage will help people with PNH see that there is hope and to never give up. I know this is true because without hope there is nothing else left. So I want to say to everyone "Make everyday count!"
Alison
Alison
Holister, CA USA - Wednesday, February 02, 2000 at 17:45:05 (PST)
1-31-00
Today I went to school for my CPR class...it was fun. I ended up having to add that class for another day. So I will be going on M,T,W,TH. So I guess things worked out fine! I guess I should just pace myself with my emotions if things do not go as they are planned. Otherwise, Ray and I are moved in. It is nice to have a place of our own. Tonight we cooked Mamwiches for dinner..Yummy!
God Bless,
Alison
Alison
Holister, CA USA - Monday, January 31, 2000 at 19:23:24 (PST)
1-30-00
Well today Ray and I moved everything into our new place. The hard part now is unpacking. I am so excited about being out on my own. I know that I can do it because I have inner strength as well as a great roomate (Ray.) The only bad thing that happened this weekend was that one of my classes got canceled. So I started to panic that I would not get into the class. So I took a couple of deep breathes, and opened up the course catolouge to find a better time to get into the classroom. So it ends up that I will be going 4 days a week. So I better go to bed I have an 8:00 class tommorrow.
God Bless-Alison
Alison
Holister, CA USA - Sunday, January 30, 2000 at 22:05:38 (PST)
1-27-00
well today at school I felt so out of place. On my way to my second class I could not find it. So I had to ask a lady to point me in the direction of the building. I was already runing late trying to find a parking place. So at this point I was ten minutes late to my class. I was sweating it because the profesor only allows three tardies, and then it will be counted as an abscence. Otherwise, I have a class called "Career Sucess for re-entry women" this class is great. All 15 students are in a circle of tables having to describe why they are taking the class. This class will help me a lot with getting my memeory back to normal as well as meeting some interesting women. I know I will enjoy this class. Then on Saturday I have a class called " CPR- emergency response to Emergencies." This class will allow me to get recertified. So that class should be fun as well.
Alison
Alison
Holister, CA USA - Thursday, January 27, 2000 at 17:43:51 (PST)
1-27-00
Last night Ray and I bought a washer and dryer for our new place. We are moving in this weekend. So this is exciting! Yet, a lot of things are happening like starting school, and having to go for check-up's at the hospital. I guess this is another chapter of my life forming as each days turns. I am happy about starting back to school. My Instructors are very nice, and the material sounds fun. Well, I am off to school now.
Alison
Alison
Holister, CA USA - Thursday, January 27, 2000 at 06:57:38 (PST)
1-25-00
Well I was discharged from the hospital yesterday. So today I started school. I am enrolled in 12 units. I am so happy I made it out of the hospital on time. The doctors said that the Shingles might have been brought on by stress. So I guess I need to find a way to manage my stress better.
It was so nice being part of a classroom with other students. It is reassuring to me that I am going to move fourth with my life. So going to school the first day made me feel more confident in myself. So I am not going to let anything let me get down. Otherwise, I am having to take 5 pills a day of Acyclovera. As long as God is watching over me I trust him with my worries and, I will give him my stress.
I want to thank everyone that has prayed for me while I was in the hospital. I know all the prayers worked and, I am ever so grateful.
God Bless,
Alison
Alison
Holister, CA USA - Tuesday, January 25, 2000 at 21:51:22 (PST)
1-24-00
Well today I am going to be discharged from the hospital due to Shingles. I am very excited because I will be starting school tommorrow. Yeah!! I will have to take 5 Acyclovera pills a day for 14 days. So again I thank everyone for praying for me. I do believe prayers work as well as guardian angles. So I am going to be praying for all my new friends at onelist. Thanks... Thanks to my Granfather that is going to pick me up today!!
God Bless,
Alison
Holister, CA USA - Monday, January 24, 2000 at 12:52:26 (PST)
1-23-00
Well I have been in the hospital for seven days with Shingles. The Shingles are on my back and side. I was admitted to the hospital last Sunday. So the doctor has told me I should be discharged by Monday. Which is great because I start school on Tuesday. So I was excited to hear about that. On my Homepage I have added a new section for a support group for PNH. If you have PNH and would like to add a response or share your story in this section as well. I know this will help others. When I was diagnosed with PNH I felt so alone in this disease, but I have found some good friends on the ONElist support group. So thanks to all of you!
God Bless,
Alison
Alison
Holister, CA USA - Sunday, January 23, 2000 at 12:47:04 (PST)
1-20-00
I went in to the hospital on Sunday due to Shingles across my left side. My side was itchy, and it started to form blisters. I am now on an I.V. having Aceclovera. I am hoping to be out of here by at least Saturday because school starts for me on the 25th. The doctors say that the shingles could have been brought on by stress. The only thing that I have been stressing about is starting school. This is my first time back to normal scholl since last Spring. So instead of worrying I am going to put it in the lords hands. I want to thank the people that have been praying for me. If I can get past the worst I know I can get thru this. I want to thank the priest that called me today. I know the prayer groups will work. So thanks to you all. Today my I.V. line went bad so I had two attempts to get a new one in. One of the nurses said well lets say a prayer and let's hope it works. Then the phone rang, and it was the priest. My line was able to get in fine! My Mom, and Step-Dad came to visit me today. It was nice to see them. God Bless!!!
Alison
Alison
Holister, CA USA - Thursday, January 20, 2000 at 16:22:14 (PST)
January 16, 2000
Alison came down with a case of shingles on Sunday, January 16 and has been re-admitted to Stanford Childrens Hospital. She is in great spirits and although in quite a bit of pain is joking around and claiming she is back for a short "vacation" before resuming her college degree program.
Dad is on the road working again but Ray (who could ask for a better Son-in-Law) is staying with her at the hospital.
Alison is getting a lot of iv fluids and anti-viral drugs to help speed her recover. She hopes to get out of the hospital in 3-5 days.
Dad
Palo Alto, CA USA - Tuesday, January 18, 2000 at 14:41:17 (PST)
1-13-00
Today my therapist came, and we worked on short term memory. As for yesterday I recieved my schudule of classes. So I was happy to have gotten that. I know I will do great in the classes if I just put effort and study lots! I am goin to go into this with a positive attitude. I have my blood results to post:
WBC: 4.6
RBC: 3.76
HGB: 12.6
HCT: 36.9
MCV: 98.1
MCH: 33.5
MCHC: 34.2
PLT: 129
MPV: 7.3
These counts are pretty good. Platelets normal range is: 150-450, so I am getting closer.
So I am hoping for an even better counts next appointment. I just have to take in one step at a time.
Alison
Alison
Holister, CA USA - Thursday, January 13, 2000 at 15:11:45 (PST)
1-12-00
Today was very productive for me. I was very sad this morning feeling if everything would go wrong with me starting back to school. I thought long, and hard that I could sit and cry or do something about it. So I started out early in the morning trying to fix everything that was on my mind. So I had to make a few calls to my College, and Department to settle a situation that arose today when I recieved a letter saying that my position is #3. I was getting flustered when I was not sure of my final tenative school schedule. Later in the day when the mail came my class schedule was there. I try to tell myself that I am a smart girl, and that if I put my mind to it I can do it. I think this is imprortant to me in my recovery and, in my illness and getting my independence back!
Alison
Alison
Holister, CA USA - Wednesday, January 12, 2000 at 18:40:42 (PST)
1-11-00
Today I went to the hospital for a check-up, and a CBC. All my blood counts look great! I will post them tommorrow. I have a rash on my left side of my face, but the doctors checked it out and said it was nothing, but just keep an eye on it. Then after my appointment I had my teeth cleaned, and looked at to make sure I do not have any cavities. The dentist wants me to come back in April to check on a tooth that I had a root canal on because it might need to be re-done because there is a hole in it which could lead to something else. So it is safe to have my teeth cleaned and polished to scan them for any abnormalities which could have been brought on from my treatment from the bone marrow transplant.
So tommorrow I will post my blood counts!
Alison
Alison
Holister, CA USA - Tuesday, January 11, 2000 at 20:27:08 (PST)
1-8-00
Today Ray's brother and I wen to pick up the sofas. They are very nice! So now all we need is a washer and dryer. As well as a kitchen table with chairs. We found a cute table at a shop in town. So hopefully we can purchase it. As I said before thanks for visiting my homepage for all that have come to see my progress as well as mention any of thier feelings. I guess what I am saying is it takes courage and, strength to go thru all of this. If you believe you can do anything I bet that you can. Never give up hope! Remember all dreams do come true, and at the roughest points in our life might be the one we will never forget or we might even learn from them. I hope I can pass this message on.
Waves of Peace!!
Alison
Alison
Holister, CA USA - Saturday, January 08, 2000 at 20:43:14 (PST)
test
Alison
Holister, CA USA - Saturday, January 08, 2000 at 12:37:04 (PST)
1-8-00
Today I went grocery shopping, and when I got home a cooked a Mediteranian chicken dinner
it was great! everyone loved it!! I also cooked cupcakes, yummy. I want to thank the people
that are asking me questions about PNH. I want to help people learn what I have been thru. I
know when I was diagnosed I was scared. I felt so alone, and if I were the only person to have
this disease. I feel great now, every day I wake up and make every day count. So my advice is
to live your life to the fullest!
Alison
Alison
Holister, CA USA - Friday, January 07, 2000 at 18:48:40 (PST)
1-7-00
Tommorrow I am going to pick A sofa and love seat for Ray and mine apartment. I am getting
excited. Everything is comming together. I am going back to regular school, and I am going to
have my own place. I have an appointment at Stanford on Tuesday the 11th. This time I do not
have to go to the day hospital. Instead I will see my hemotologist Dr. the one I saw when in
1986 when I had Aplastic Anemia. So I hope this appointment will show great blood counts!
Alison
Alison
Holister, CA USA - Friday, January 07, 2000 at 11:48:47 (PST)
1-5-00
Today my speech therapist is coming today to help me with the cognitive, and short term
memory. Since school is approaching quickly. School starts on January 24th. I am getting
excited!! Although I do hope that I do well. I guess as long as I study hard I shall do good! On
January 11th I have a doctors appointment. This appointment I do not have to go to the day
hospital for Pentamideem. The BMT doctors have now transferred me back to
Hemotology/Oncology floor. I will see the doctor that I saw in 1986 in which at that time I had
Aplastic Anemia. I am a fighter though, so I will conquer anything!!
Alison
Alison
Holister, CA USA - Wednesday, January 05, 2000 at 09:21:16 (PST)
Today my friend Summer and I went to Shirley's house. Shirley made us a salad, and garlic
bread and a lovely pasta with artichoke hearts and sun dried tomatoes. It was yummy. I do miss
going to school with them. This Spring I will be back, and I am going to be very excited! This
Sunday I went to church with Ray and his Aunt, and Uncle and cousin. I met the pasture who
had been thru a bone marrow transplant. I also got up, and had to show everyone in the
church who I was since I am on their prayer list. I really enjoy attending the church on Sunday
it is lively, and everyone knows one another. I want to thank Ray's Aunt and Uncle for inviting
us to join there church.
Alison
Alison
Holister, CA USA - Monday, January 03, 2000 at 21:58:33 (PST)
On New Years I stayed at Ray's place, and had a couple of wine coolers. we watched the New
Years celebrations all over the world on T.V. I am so lucky to have made it to the New Year! It
looks like Ray and I will move in to the apartment by the end of the month. Today Ray and I are
going to church.
Alison
Alison
Holister, CA USA - Sunday, January 02, 2000 at 08:39:02 (PST)
12-31-99
Yesterday Nancy and I went out to lunch with my Father. We went to Gumbas in Sunnyvale. It
was nice to see her again. She was the nurse that hooked up my bone marrow. She was my
favorite nurse. I will never forget her. Tonight Ray and I are going to celebrate the New Year
at home and toast to the New Year and make New Year resolutions.
HAPPY NEW YEAR!!!!!!
Alison
Alison
Holister, CA USA - Friday, December 31, 1999 at 10:02:13 (PST)
12-28-99
Today I am at my Fathers house visiting. Ray took my car in to put new brakes, and change the
oil, and put new axcels in my car. Since I am going to stary driving more now that I am able to.
This morning after I had eaten a doughnut for breakfast with tea,and my morning pills, and
took a shower I threw up. This is the fourth time it has happend. Every time I eat breakfast,
and have my morning pills I feel sick, and sometimes throw up. So I am going to have to call my
Doctors to see what is happening. I hope it is nothing serious. I will pray for the best, and
keep positive thoughts.
Alison
Alison
Holister, CA USA - Tuesday, December 28, 1999 at 09:40:19 (PST)
12-27-99
Today I had my therapist come and help me with my short-term memory. We went over some
word problems and math problems (I was never good in math.) Tommorrow I am going to my
Fathers house. Then on Thursday I am going to my Dad's house to see one of my favorite
nurses at Stanford Childrens hospital. I am looking forward to seeing her.
Today I also did some practice driving since It has been a long time since I have drivin. I feel
comfortable driving, but there is always something in the back of my mind if something could
happen. I guess it is one of the fears that you go thru after not driving for quite a long time. I
just need to have more confidence in myself like I had before the transplant. I do time I hope
things will be back to normal. Then I ask my self what is normal. I guess everyday is a new
mystery, and all I can do is live my life to the fullest.
Alison
Alison
Holister, CA USA - Monday, December 27, 1999 at 18:14:28 (PST)
12-26-99
Today Ray and I went to Church with his Aunt and Uncle. I met the people who have been
praying for me since I became sick. The Pasture of the church had recently been thru a Bone
Marrow Transplant. It is nice to go to church and have the faith and be in the lords presents. I
do wish everyone a Happy New Year!
Alison
Alison
Holister, CA USA - Sunday, December 26, 1999 at 19:31:10 (PST)
12-25-99
Merry Christmas! Today my family and I opend presents and had coffee cake. I recieved many
things to put into mine and Rays' apartment. We then went to Rays' Fathers house to wish him
a Merry Christmas. We then went to his Aunt and Uncles house. Tonight I have a sore throat,
and I am hoping that it is not serious. I do not want to get sick. So I am monitering my vitals to
be safe.
Merry X-Mas!!!!
Alison
Holister, CA USA - Saturday, December 25, 1999 at 20:57:44 (PST)
12-24-99
Yesterday my Family and I went X-Mas shopping. We had to fight the crowds. We then went to
Round Table pizza for dinner. Yummy! Today Ray and I and his brother and sister in law will go
to his Uncles house, and then look at Ray's brothers house that is being built. So it will be a
fun day! I can't wait till Christmas. Only one more day left.
Alison
Alison
Holister, CA USA - Friday, December 24, 1999 at 09:08:57 (PST)
12-22-99
Today my family and I went Christmas shopping! We went to Costco and I got a membership
and a vacumm and then we went to ROSS and I picked out two lamps and a pair of shoes. This
year I want to get stuff for Ray and Mine apartment since we have nothing. Everyone has been
very nice to let us have things while we are starting out. This Christmas is extra special
because I am doing great and can continue with my life and make everyday count. So Merry
X-Mas!
Alison
Alison
Holister, CA USA - Wednesday, December 22, 1999 at 16:34:14 (PST)
12-20-99
On Sunday Ray and I went to his Sister in Laws family pre- X-mas. It was fun! We got a box of
See's candy. Yummy!! For X-Mas I am just going to get stuff for the apartment. Ray is getting
excited. I do wish all my new friends thru Onelist a Very Merry X-Mas! This year I am very
thankful for everything I have.
Alison
Alison
Holister, CA USA - Monday, December 20, 1999 at 08:57:13 (PST)
12-18-99
I am so excited that Christmas and the New Year is right around the corner. This year I have
so much to be thankful for.
Last night I had a bad experience with my sister. She was in a bad mood, and later I went to
Ray's house and broke down in tears. I made his sleeve of his shirt all soggy in tears. My soul
is gentle you need to be nice with me. I wish that she could find it in her heart to except me
without making me feel as if she would rather me not be here today.
I know that in her heart she does not know how she makes me feel. I thy to let her know rather
than keeping it inside.
My Nurse Practioner called last night telling me I do not need to take Prograf anymore.
I wish everyone a Merry Christmas and a Happy New Year!
Waves of Peace,
Alison
Alison
Holister, CA USA - Saturday, December 18, 1999 at 12:32:15 (PST)
12-17-99
Last night 12-16 Ray and I announced to my Mom and Stepdad that Ray and I are going to
move in together. It won't be til Feburary. So we are looking for stuff to put into the apartment.
lAlison
Alison
Holister, CA USA - Friday, December 17, 1999 at 15:24:41 (PST)
12-17-99
Today I drove to San Juan Bautista, and had some lunch with my Mother at Mission burger . I
had a teryaki burger with french fries, and my Mom had a Ortega burger. Then we toured the
mission. It was the furthest I have drivin in a long time. It feels nice to be able to drive again!
Alison
Alison
Holister, CA USA - Friday, December 17, 1999 at 15:20:59 (PST)
12-16-99
This morning after I ate breakfast ( one small doghnut) and my morning cup of tea. I had my
morning pills, and went to work on my computer and I threw up. I took my temperature and
blood pressure and they were normal.
The good news is that I am legal to drive now. Yesterday December 15th was six months from
the time I went code blue and had a seiuzer.
When I went for my doctors appointment I saw were I was in ICU. I have no recollection of
even being there. The doctors say that is good because it was a trying time.
I thank God and my Family and friends and my fiance that helped me out during that time.
Alison
Alison
Holister, CA USA - Thursday, December 16, 1999 at 10:32:31 (PST)
12-15-99
Yesterday I went to the hospital for a CBC and exam. It turns out the rash I had on my arm was
ring worm. The doctors gave me some ointment to put on it twice a day. My blood counts look
good. They are the best counts I have had in a long time.
WBC 8.2
RBC 4.00
HGB 14.2
HCT 40.3
MCV 101.0
MCH 35.5
MCHC 35.2
RDW 10.8
PLT 124
MPV 7.3
Today my therapist came. We went over some word problems. I signed up for my classes but,
for the head and Neck class I just found it was full. It makes me feel sad because I wanted to
take this class now. I guess that is life. When you plan things out they do not always happen
the way you want it to.
I want to thank everyone for sharing thier stories with me thru the Onelist for people that
have PNH. Remember we are all Gods children he is look down at us all the time.
Alison
Alison
Holister, CA USA - Wednesday, December 15, 1999 at 12:30:33 (PST)
12-13-99
When you are sad
When you are sad,
I will dry your tears.
When you are scared,
I will comfort your fears.
When you are worried,
I will give you hope.
When you are confused,
I will help you cope.
And when you are lost,
And cannot see the light.
I shall be your beacon
Shining ever so bright
This is my oath.
I pledge till the end.
Why you ask?
Because you are my friend.
Alison
Holister, CA USA - Monday, December 13, 1999 at 16:48:57 (PST)
12-13-99
Today My Mother and I went to Cabrillo College to register for my classes for the Spring
semester. I enrolled in Public Speaking, a listening class, Head and Neck anatomy, and a class
for College success forRe-entering women. So this is going to be fun to go back to normal
school.
On Saturday December 11th was my Grandfathers party. All the grandchildren were invited. It
was so nice to see my Aunts and Uncle. The party was held at the Morrocan club in San Jose
were belly dancers performed. The food was great! Tommorrow on December 14th I have a
doctors appointment.
Alison
Alison
Holister, CA USA - Monday, December 13, 1999 at 16:42:27 (PST)
12-10-99
I have been working with my speech therapist yesterday, and today. She is getting me ready to
go back to school. She is helping me out with the Head and Neck anatomy book in which I will
need to know for returning back to school. Since I am going to be a Dental Hygienist.
This Saturday (December 11) is my Grandfathers birthday! he is having all the grandchildren
come out for his party. It will be fun to see my cousins, my Aunt's and Uncle's.
I want to thank my fellow PNH friends. It is great to know that there is people to talk to about
this disease. I also joined a PNH support group via the internet where you can share your
story or ask questions.
The group is located at: www.onelist.com
Alison
Alison
Holister, CA USA - Friday, December 10, 1999 at 10:42:23 (PST)
12-6-99
Yesterday on Sunday Ray and I went to Salinas. We walked around the mall, and then for
dinner we ate at the Red Lobster. It was a fun outing. Tommorrow is my last day on internet
school. I feel I am doing pretty good with my classes. Tommorrow is a final in Sociology. Health
wise I am doing great! except for a little rash on my wrist. It is looking better than it was. I am
so happy that I met a lot of people that share the disease called PNH. I feel I am not alone in
this battle.
Alison
Alison
Holister, CA USA - Monday, December 06, 1999 at 17:32:23 (PST)
12-3-99
Here are some quotes I found:
" Yesterday is history, Tommorrow is a mystery.
Today is called the present because it's a gift."
"You can't cross a chasm in two small leaps."
"Do not take life's experiences too seriously. Above all do not
let them hurt you, for in reality they are nothing but dream experiences...
If the circumstances are bad and you have to bear them.
Do not make them a part of yourself.
Play your part in life.
But never forget that it is only a role."
" Be afraid of nothing, You have within you- All Wisdom, All Power, All Strength all
understanding."
Alison
Holister, CA USA - Friday, December 03, 1999 at 13:12:11 (PST)
12-2-99
Today my therapist came, and gave me some worksheets to work on. The problems that I
needed help on were the math problems. I was never good at math before. So this will help
me get ready for going back to school in the Spring.
Alison
Alison
Holister, CA USA - Thursday, December 02, 1999 at 13:26:13 (PST)
11-29-99
Today my Mother and I are working on a report for my Sociology class. As well as other work
for my classes. It it wierd how time flies by so quickly. It seems every day I am progressing. I
am going to attend regular school in the Spring to finish up my A.A. degree and some more
classes for Dental Hygiene. I want to thank everyone for signing my guestbook. They have
been encouraging words as well as new friends!
Alison
Alison
Holister, CA USA in the Spring, and that I hope to be able to drive soon.
On November 6th my good friend Shirly is getting married, I am looking forward to going. It might give me
some ideas how I want my wedding!
Alison
Holister, CA USA - Wednesday, October 20, 1999 at 14:47:48 (PDT)
10-19-99
I have been busy with internet school lately. I am waiting to get some therapy going soon. I want to get my life
back to the way it used to be. I am hoping to go back to Real school in the Spring. I want to be able to drive, and
and go out in public without a mask on. It might take time, but it is frusterating at times.
Alison
Holister, CA USA - Tuesday, October 19, 1999 at